AMDF CEO Sean Murray has presented Danebank School with the AMDF School Community Award. Read more.
Western Australian residents affected by rare disease are encouraged to participate in a focus group hosted by The Office of Population Health Genomics to help improve care coordination. Read more.
Update: Khondrion clinical trial progress
Mitochondrial research centre, Khondrion, has announced the completion of patient recruitment and first-in-patient dosing as part of Phase II of their KHENERGY clinical trials investigating the affect of small compounds on a genetic mutation associated with MELAS. Read more.
Continuation of trials for mitochondrial disease
Following positive results from initial testing, Stealth BioTherapeutics have announced the continuation of trials for evaluating elamipretide in primary mitochondrial disease. Read more.
Read a media release from AMDF that discusses AMDF’s stance on mitochondrial donation in light of the Human Fertilisation and Embryology Authority’s approval of the technique in the UK.
Read a story from MamaMia about mitochondrial donation. In the story, Alice Gibson, who has mitochondrial disease (mito), talks about difficulty of planning a family without access to this revolutionary IVF technique.
Listen to ABC’s ‘Beyond the Lab’, featuring developments in prenatal screening and IVF techniques, including mitochondrial donation.
Watch an interview with AMDF CEO Sean Murray that discusses the recent news of the first successful birth of a child using mitochondrial donation.
Read an article in BBC News about the first successful birth of a child using mitochondrial donation in Mexico.
Listen to AMDF CEO Sean Murray discuss Stay in Bed Day and mitochondrial disease on 612 ABC Brisbane.