Following positive results from initial testing, Stealth BioTherapeutics have announced the continuation of trials for evaluating elamipretide in primary mitochondrial disease. Read more.
Dutch mitochondrial research centre, Khondrion, has announced the development of phase II clinical trials for adults and children suffering from a genetic mutation linked to MELAS. Read more.
A children’s book in tribute to Kate Drury, who passed away from mitochondrial disease in 2015 will be released during Global Mitochondrial Disease Awareness Week. Read more.
Steve Waugh Foundation grant
Individuals aged 0-25 years affected by very rare cases of mito may be eligible for a grant to cover medical expenses. Read more.
Genioz study into awareness of genetic science
Australians aged 18 and over are encouraged to share their opinions on genetic science. Read more.
Parents of children aged 6 to 18 with a rare disease are invited to take part in a new research project Read more.
Global Mitochondrial Disease Awareness Week
18-24 September 2016
AMDF Awards Winners Announced
Stay in Bed Day
25 September 2016
Paediatric Nutrition Teleconference
6 October 2016
Perth Information Day
11 November 2016
Brisbane Information Day
18 November 2016
Listen to AMDF CEO Sean Murray discuss Stay in Bed Day and mitochondrial disease on 612 ABC Brisbane.
Read an article in the Bayside Star featuring Bronwynn and Steve Levett,who discuss their experience of mito and Stay in Bed Day
Read an article in the Newcastle Herald about the Meyers family, who participated in Stay in Bed Day in memory of their daughter.
Watch a live cross to Ari’s Food Safari, an event that raises funds for AMDF, from Channel 10 Brisbane News.
Read Mitochondrial Disease News’ article on the use of gene therapy to replace faulty genes in patients with Leber’s hereditary optic neuropathy (LHON).
Read the Sydney Morning Herald’s article on the development of Australia’s first whole genome testing service, which can analyse all 20000 genes in a single blood test.
Read Mitochondria Disease News’ article on NovoTHOR, a light therapy device, which won the Invention Award at the recent Elite Sports Rehabilitation Expo 2016.
Mitochondrial Disease News have published an article detailing a new study on mito donation and DNA compatibility. Read the article here.
Listen to AMDF PhD scholar Nicole Lake being interviewed on 3RRR radio station. She discusses her current work on mitochondrial disease, specifically Leigh Syndrome. She also discusses mitochondrial donation.