In Memory of Rose Lingard
With great sadness, the AMDF learnt the news of the passing of Rose Lingard on Friday, 9 June 2017. Read more.
How does the Federal Budget impact the mito community?
Read AMDF’s position statement and summary of the Federal Budget, and how it will impact the mito community. Read more.
Funding announced for ‘Big Bear Cottage’
On 2 April, NSW Premier Gladys Berejiklian and Minister for Health Brad Hazzard pledged two million dollars of funding to establish Big Bear Cottage – a hospice for 18 to 30 year olds. Read more.
AMDF-AGHA Genetic Testing Partnership
AMDF is pleased to announce a new research opportunity for patients with suspected mitochondrial disease. The project aims to provide patients with a genetic diagnosis, and determine the most effective way to diagnose mito. Read more.
International Patient Forums
A number of international patient forums are available to the Australian mito community in 2017. Read more.
Mito Connect Call – NDIS
3 August 2017
Pagewood Botany Football Club Fundraiser
5 August 2017
Mito Connect Call
7 September 2017
Adelaide Support Group Meeting
9 September 2017
Adelaide Information Day
9 September 2017
INSPIRE article on genomic sequencing
Read an article published in Research Australia’s INSPIRE magazine that discusses why pursuing a diagnosis of mitochondrial disease is important, and how genomic sequencing can improve diagnoses in Australia.
RCPA article on the AMDF-AGHA partnership
Read an article from the The Royal College of Pathologist of Australasia’s monthly newsletter that discusses AMDF’s partnership with the Australian Genomic Health Alliance, and how the project this project will enable every person with a strong suspicion of mito to gain a definitive diagnosis via genetic testing.
First clinical mitochondrial donation licence granted in UK
Read a media release from AMDF regarding the first clinical mitochondrial donation licence in the UK. AMDF applauds the announcement as a major step forward for the global mitochondrial disease community.
News.com.au story on the Beard family
Read a story about Pippa and Tony Beard. The Beard family have a history of mito, with Pippa being severely affected. Pippa’s sister Toby experiences mild symptoms and would love have a child of her own. Mitochondrial donation could ensure that she doesn’t pass on this debilitating disease to her future child.