We regularly hold information nights in Brisbane, Sydney, Perth & Melbourne.
Corporations are encouraged to partner with the AMDF, to benefit the entire mito community.
Carol Moore, (02) 9560 2826, 0402 382 363, firstname.lastname@example.org
5 December 2012
Each week Dr. John D'Arcy presents an in depth analysis of the latest health news on a national radio program called "Health Matters with Dr John D'Arcy". This time Dr Karen Crawley is talking about mitochondrial disease and how the disease affects two of her children.
27 October 2012
A technique intended to eliminate mitochondrial diseases would result in people with three genetic parents.
18 September 2012
Federal Member for Cook in Sydney's South encourages both supporters and detractors to support him to shut up his house for the day in support of Stay in Bed Day to support mitochondrial disease.
17 September 2012
Medical procedures designed to prevent mitochondrial disease by combining DNA from two parents and a healthy female donor.
28 August 2012
Biotechnologies such as stem cells, embryo research and pronuclear transfer research are thrusting us into uncharted political territory.
22 August 2012
Scientists say the size of a brain cell's mitochondria could impact patients with Alzheimer's disease.
2 August 2012
Scientists believe they have discovered a clue to why women tend to live longer than men - by studying fruit flies.
26 January 2012
New next-generation DNA sequencing technologies are transforming the way we do research on inherited diseases including mitochondrial disease.
8 December 2011
Little Levi Taprell owes his life to science and an older brother he'll never meet.
1 December 2011
Could mitochondria be manipulated as a favourable treatment of cancer?
30 November 2011
Mitochondrial dysfunction is gaining a growing support in the scientific community for its role in Parkinson’s disease.
28 October 2011
Scientists hypothesise that the state of the cell’s mitochondria may be the key.
26 September 2011
2011 Australian of the Year Simon McKeon will chair an independent review of health and medical research in Australia and recommend a 10-year strategic health and medical research plan for the nation.
8 September 2011
Scientists hope that Leigh Syndrome one day able to be diagnosed by a simple blood test relieving potentially years of anguish for parents.
3 September 2011
AMDF Chairman Dr Doug Lingard shares his personal experience of mitochondrial disease and the devastating affects it has on his family.
Dr Lingard explains 1/200 occurrence of mito amongst the population and highlights the lack of knowledge and awareness of the disease. "Many [people] are symptomatic but are left undiagnosed."
Furthermore, Dr Lingard raises the awareness of mito amongst 2UE listeners and gets the message out about this depilating disease
18 April 2011
Recent front page coverage in the Sydney Morning Herald explores recent calls by industry bodies to review legislation around research techniques - legal in the UK - that could benefit mitochondrial disease sufferers.
25 March 2011
An article in Australian Doctor provides a comprehensive definition of mitochondrial disease, the causes, treatments and diagnosis options aimed to educate GPs.
12 January 2011
8 January 2011
The Sydney Morning Herald science editor, Deborah Smith, explores the fast growing industry of mainstream genetic testing.
10 December 2010
David and Melissa Nelson have decorated their home for Christmas to raise much needed funds and awareness about mitochondrial disease that affects their children Blake and Amber. In pictures.
1 Dec 2010
23 August 2010
Two hundred people set a world record for the most people in the world's biggest bed at The Big Bed-Down at Bondi Beach for National Stay in Bed Day on 22 August in aid of mitochondrial disease, a debilitating genetic disorder that robs the body’s cells of energy.
Sydneysiders exhausted from the election snuggled up in the 50m-wide sand bed, enjoyed coffee, croissants and newspapers, and were entertained by singing and commentary from event ambassador, actor John Howard (Packed to the Rafters), who has three friends with mitochondrial disease.
People around the country were sponsored to lie back and relax on National Stay in Bed Day to raise funds for mitochondrial disease, which affects up to 90,000 people and is potentially fatal yet has few effective treatments and no cure. To read more about the Big Bed-Down click here.
19 August 2010
It was National Stay in Bed Day on Sunday 22 August, when people around Australia lie back and relax to help beat mitochondrial disease, a debilitating and potentially fatal genetic disorder that robs the body’s cells of energy and can damage the muscles, brain, heart, liver, ears and eyes.
There are few effective treatments and no cure for mitochondrial disease, which affects children and adults. Sufferers often experience muscle weakness and fatigue, and need to rest and “recharge their batteries” in bed or in a wheelchair. Click here to find out about Stay in Bed Day.
18 August 2010
It’s official: we’re a nation of exhausted sleep-a-holics dreaming about our next nanna nap and how to get the bed to ourselves or make room for fantasy bed mates like George Clooney, Elvis Presley or Angelina Jolie.
The Bedroom Secrets Survey - conducted to provide ideas for this Sunday’s National Stay in Bed Day - shows four in ten people (42.2%) would much rather catch up on beauty sleep during Sunday mornings in bed than indulge in “love and cuddles” (26.7%). Want to read more about the survey click here.
10 August 2010
People are being urged to wear their best pyjamas, bring their pillow, towel and teddy bear and bunk down in Bondi’s biggest beach bed with actor John Howard and hundreds of history-making Sydneysiders for National Stay in Bed Day from 10am on Sunday 22 August.
The Big Bed-Down at Bondi Beach (and other less public lie-ins around the country) is in aid of mitochondrial disease, a debilitating and potentially fatal genetic disorder that robs the body’s cells of energy and can damage the muscles, brain, heart, liver, ears and eyes. To learn more about the Big Bed-Down click here.
5 June 2010
13 August 2009
Doctors hope an innovative vibration therapy may provide an effective treatment for mitochondrial disease, a debilitating and potentially fatal genetic disorder that causes muscle weakness and robs sufferers of their energy, among other symptoms.
A clinical trial among children and young adults was announced today at a Mitochondrial Forum at the Kolling Institute at Sydney’s Royal North Shore Hospital.
Genetic mutations of the mitochondria – the energy source or ‘battery’ in every body cell – may be 100 times more common than previously thought, with recent research suggesting that up to 1 in 250 Australians (approx 90,000 people) may be affected. Many are undiagnosed or at risk of developing the disease or passing it on to their children. To read more about vibration therapy click here.
Professor John Christodoulou:
Professor Carolyn Sue:
Professor David Thorburn:
Assoc Professor Phillipa Lamont:
Dr Doug Lingard:
clinician & researcher, mitochondrial disease in children
clinician & researcher, mitochondrial disease in adults
researcher, mitochondrial disease
clinician & researcher, mitochondrial disease in children
chairman, Australian Mitochondrial Disease Foundation; family affected by mitochondrial disease