We regularly hold information nights in Brisbane, Sydney, Perth & Melbourne.

 

Click here for our list of events

Corporations are encouraged to partner with the AMDF, to benefit the entire mito community.

Read more about corporate partnership opportunities.

Media

 

All media enquiries should be directed to:

Carol Moore, (02) 9560 2826, 0402 382 363, carolmoore@moorepr.com.au

 



 

5 December 2012

Karen Crawley interview with Dr. John D'Arcy


Each week Dr. John D'Arcy presents an in depth analysis of the latest health news on a national radio program called "Health Matters with Dr John D'Arcy". This time Dr Karen Crawley is talking about mitochondrial disease and how the disease affects two of her children.

 

Karen Crawley interview with Dr. John D'Arcy

 


 


 

27 October 2012

Hello Mothers, Hello Father - The Economist


A technique intended to eliminate mitochondrial diseases would result in people with three genetic parents.


Gene therapy: Hello mothers, hello father - The Economist



 

18 September 2012

Keep Morrison in bed for mito awareness


Federal Member for Cook in Sydney's South encourages both supporters and detractors to support him to shut up his house for the day in support of Stay in Bed Day to support mitochondrial disease.


Keep Morrison in bed for Mito awareness, Media Release, Office of Scott Morrison, MP



 

17 September 2012

British regulator to consult public over plans for new fertility treatments


Medical procedures designed to prevent mitochondrial disease by combining DNA from two parents and a healthy female donor.


Regulator to consult public over plans for new fertility treatments, The Guardian



 

28 August 2012

Biotech is thrusting us into new political territory


Biotechnologies such as stem cells, embryo research and pronuclear transfer research are thrusting us into uncharted political territory.


Brave new biopolitics - biotech is thrusting us into new political territory, New Scientist



 

22 August 2012

Breakthrough in Alzheimer's disease research


Scientists say the size of a brain cell's mitochondria could impact patients with Alzheimer's disease.


Breakthrough in Alzheimer's disease research, The Courier Mail, ABC Radio, PM with Mark Colvin



 

2 August 2012

Fruit flies offer DNA clue to why women live longer


Scientists believe they have discovered a clue to why women tend to live longer than men - by studying fruit flies.


Fruit flies offer DNA clue to why women live longer, BBC News Health, 2 August 2012



 

26 January 2012

Breakthrough in gene technology offers fresh hope to people suffering from mitochondrial disease


New next-generation DNA sequencing technologies are transforming the way we do research on inherited diseases including mitochondrial disease.


Breakthrough in gene technology offers fresh hope to people suffering from mitochondrial disease, NineMSN



 

8 December 2011

From tragedy comes baby joy


Little Levi Taprell owes his life to science and an older brother he'll never meet.


From tragedy comes baby joy, The Courier Mail, 8th December 2011



 

1 December 2011

Mitochondria “hyperactive in cancer”


Could mitochondria be manipulated as a favourable treatment of cancer?


Powerhouse of cells "hyperactive in cancer", Cancer Research UK, 1st December 2011



 

30 November 2011

Parkinson’s disease culprits lie in, outside cells


Mitochondrial dysfunction is gaining a growing support in the scientific community for its role in Parkinson’s disease.


Parkinson's disease culprits lie in, outside cells, The Republic, 30th November 2011



 

28 October 2011

Suicidal cells respond best to chemo


Scientists hypothesise that the state of the cell’s mitochondria may be the key.


Suicidal cells respond best to chemo, ABC Science, 28th October 2011



 

26 September 2011

Australian of the Year "A Bright Future for Australian Health and Medical Research"


2011 Australian of the Year Simon McKeon will chair an independent review of health and medical research in Australia and recommend a 10-year strategic health and medical research plan for the nation.


Read the annouuncement and the profiles of the expert panel, 26th September 2011



 

8 September 2011

Hope for Leigh Syndrome diagnosis


Scientists hope that Leigh Syndrome one day able to be diagnosed by a simple blood test relieving potentially years of anguish for parents.


Hope for Leigh Syndrome diagnosis, The West Australian, 8th September 2011



 

3 September 2011

AMDF Chairman interviewed on 2UE radio


AMDF Chairman Dr Doug Lingard shares his personal experience of mitochondrial disease and the devastating affects it has on his family.


Dr Lingard explains 1/200 occurrence of mito amongst the population and highlights the lack of knowledge and awareness of the disease. "Many [people] are symptomatic but are left undiagnosed."


Furthermore, Dr Lingard raises the awareness of mito amongst 2UE listeners and gets the message out about this depilating disease


Podcast of Dr Lingard's interview on 2UE's Health Living with Dr Ross Walker, 3rd September 2011



 

18 April 2011

Lifting embryo ban would ease family agony


Recent front page coverage in the Sydney Morning Herald explores recent calls by industry bodies to review legislation around research techniques - legal in the UK - that could benefit mitochondrial disease sufferers.

 

Lifting embryo ban would ease family agony, Sydney Morning Herald, 18th April 2011



 

25 March 2011

How to treat mitochondrial disease


An article in Australian Doctor provides a comprehensive definition of mitochondrial disease, the causes, treatments and diagnosis options aimed to educate GPs.


How to treat mitochondrial disease, Australian Doctor, 25th March 2011



 

12 January 2011

Mitochondrial disease featured in the Health+Medicine section of The West Australian

 

Read the article in The West Australian, 12th January 2011



 

8 January 2011

The pros and cons of mainstream genetic testing

 

The Sydney Morning Herald science editor, Deborah Smith, explores the fast growing industry of mainstream genetic testing.


Exploring the Genetic Jungle can be fraught with danger, The SydneyMorning Herald, 8th January 2011



 

10 December 2010

AMDF supporters light up Christmas to help raise awareness about mito

 

David and Melissa Nelson have decorated their home for Christmas to raise much needed funds and awareness about mitochondrial disease that affects their children Blake and Amber. In pictures.

 

Read the article in The South Coast Register, 10th December 2010

 


 

1 Dec 2010

Read The Economist article exploring the possibility of faulty mitochondria being a cause of autism. The cause of autism may be faulty mitochondria, The Economist, 1st Dec 2010

 


 

23 August 2010

John Howard & Sydneysiders set world record at The Big Bed-Down at Bondi Beach for National Stay in Bed Day

 

Two hundred people set a world record for the most people in the world's biggest bed at The Big Bed-Down at Bondi Beach for National Stay in Bed Day on 22 August in aid of mitochondrial disease, a debilitating genetic disorder that robs the body’s cells of energy.


Sydneysiders exhausted from the election snuggled up in the 50m-wide sand bed, enjoyed coffee, croissants and newspapers, and were entertained by singing and commentary from event ambassador, actor John Howard (Packed to the Rafters), who has three friends with mitochondrial disease.


People around the country were sponsored to lie back and relax on National Stay in Bed Day to raise funds for mitochondrial disease, which affects up to 90,000 people and is potentially fatal yet has few effective treatments and no cure. To read more about the Big Bed-Down click here.



 

19 August 2010

National Stay in Bed Day, Sunday 22 August to Help Beat Serious Genetic Disease

 

It was National Stay in Bed Day on Sunday 22 August, when people around Australia lie back and relax to help beat mitochondrial disease, a debilitating and potentially fatal genetic disorder that robs the body’s cells of energy and can damage the muscles, brain, heart, liver, ears and eyes.


There are few effective treatments and no cure for mitochondrial disease, which affects children and adults. Sufferers often experience muscle weakness and fatigue, and need to rest and “recharge their batteries” in bed or in a wheelchair. Click here to find out about Stay in Bed Day.

 


 

18 August 2010

National Stay in Bed Day survey reveals our bedroom secrets

 

It’s official: we’re a nation of exhausted sleep-a-holics dreaming about our next nanna nap and how to get the bed to ourselves or make room for fantasy bed mates like George Clooney, Elvis Presley or Angelina Jolie.


The Bedroom Secrets Survey - conducted to provide ideas for this Sunday’s National Stay in Bed Day - shows four in ten people (42.2%) would much rather catch up on beauty sleep during Sunday mornings in bed than indulge in “love and cuddles” (26.7%). Want to read more about the survey click here.



 

10 August 2010

Jump into Sydney’s Biggest Beach Bed for a good cause on National Stay in Bed Day, Sunday 22 August

 

People are being urged to wear their best pyjamas, bring their pillow, towel and teddy bear and bunk down in Bondi’s biggest beach bed with actor John Howard and hundreds of history-making Sydneysiders for National Stay in Bed Day from 10am on Sunday 22 August.


The Big Bed-Down at Bondi Beach (and other less public lie-ins around the country) is in aid of mitochondrial disease, a debilitating and potentially fatal genetic disorder that robs the body’s cells of energy and can damage the muscles, brain, heart, liver, ears and eyes. To learn more about the Big Bed-Down click here.



 

5 June 2010

Read The West Australian article about Mosman Park brothers William and Thomas Andrews fight with Mito Disease The West Australian, 5th June 2010

 



 

13 August 2009

New vibration therapy may provide an effective treatment for young mitochondrial disease sufferers

 

Doctors hope an innovative vibration therapy may provide an effective treatment for mitochondrial disease, a debilitating and potentially fatal genetic disorder that causes muscle weakness and robs sufferers of their energy, among other symptoms.


A clinical trial among children and young adults was announced today at a Mitochondrial Forum at the Kolling Institute at Sydney’s Royal North Shore Hospital.


Genetic mutations of the mitochondria – the energy source or ‘battery’ in every body cell – may be 100 times more common than previously thought, with recent research suggesting that up to 1 in 250 Australians (approx 90,000 people) may be affected. Many are undiagnosed or at risk of developing the disease or passing it on to their children. To read more about vibration therapy click here.

 


 

The AMDF is pleased to provide Australian experts for interview and comment on mitochondrial disease:


Professor John Christodoulou:

Professor Carolyn Sue:

Professor David Thorburn:

Assoc Professor Phillipa Lamont:

Dr Doug Lingard:

clinician & researcher, mitochondrial disease in children

clinician & researcher, mitochondrial disease in adults

researcher, mitochondrial disease

clinician & researcher, mitochondrial disease in children

chairman, Australian Mitochondrial Disease Foundation; family affected by mitochondrial disease

 

For more information on these mitochondrial disease experts click here