Scheduled Events

Personalised medicine - where is it now, where is it going & how will we pay for it?

A SYMPOSIUM AND NETWORKING EVENT FOR ALL THOSE INTERESTED IN CURING GENETIC DISEASES

15th March 2012

Since the human genome was first sequenced in 2005, there has been an explosion in our understanding of genetic diseases. Is Australia ready for where this will take us, and how will it be funded?

Join a select group of health sector leaders to hear eminent Australian and world experts, in Sydney for the World Human Genome Meeting 2012, address and discuss these issues.

AMDF is conducting a morning symposium exploring the topic of personalised medicine. We aim to develop a collaborative relationship with other foundations involved in funding genetic diseases in Australia.

Confirmed speakers are:

Prof Richard Gibbs
Director of the Human Genome Sequencing Center and Chair of Molecular and Human Genetics, Baylor College of Medicine, Houston
A leader in developing and applyingtechnologies for rapid genetic analysis, and involved with the Human Genome Project and the Human Microbiome Project

Prof James Lupski
Vice Chair of Molecular and Human Genetics, Baylor College of Medicine, Houston
Renowned for his groundbreaking work on the molecular basis of 'genomic disorders' (aterm he coined), including sequencing his own genome in the interests of science

Prof John Christodoulou
Director of the Western Sydney Genetics Program, The Children's Hospital at Westmead; Professor, Disciplines of Paediatrics and Child Health and Genetic Medicine,University of Sydney; member, NHMRC Human Genetics Advisory Council
A world-leading researcher and clinician in human genetics, particularly metabolic and neuro-developmental disorders in children

Prof David Thorburn
NHMRC Principal Research Fellow; Head of Mitochondrial Research, Genetic Disorders Theme; and Leader, Genomics & Personalised Medicine Research Affinity Group at the MurdochChildrens Research Institute, Royal Children's Hospital in Melbourne.
An expert on the genetic basis of mitochondrial energy generation diseases, including the use of Next-Generation Sequencing in diagnosis

Dr Clive Morris
Head of the Research Group of the National Health and Medical Research Council (NHMRC)

Registration at 8:00am on for an 8:20am start

Offices of PwC

Level 10, 201 Sussex Street, Sydney

RSVP to Carlie Maranon carlie.maranon@au.pwc.com or (02) 8266 3061

Click here for full speaker biographies.

For further information please contact AMDF Chairman Dr Doug Lingard.

Phone: 0418 161 926
Email: doug.lingard@amdf.org.au

Mito Information Day - Brisbane

March 2012

A patient/family mito information day is being planned for March 2012.
Details of the day will be confirmed closer to the event.

For further information please contact Brenton Seidl.
Phone: 0431 584 626
Email: brenton.seidl@amdf.org.au

GPCE - Sydney

20th-22nd May 2012

As part of the AMDFs goal of raising awareness about mitochondrial disease, particularly within the medical community, plans are in place for the AMDF to be represented at the GPCE (General Practitioner Conference & Exhibition) Sydney on 20th-22nd May 2012. This follows on from the awareness raising success achieved by the AMDF at the GPCE in both 2010 and 2011.

The GPCE is the biggest exhibition available for the healthcare industry in Australia.

Mito Information Day - Sydney

13th September 2012

A patient/family mito information day is scheduled for 13th September 2012 at the Kolling Institute, Ryoal North Shore Hospital, Sydney.

For further information please contact Sean Murray.

Phone: 0422 819 975
Email: sean.murray@amdf.org.au

GPCE - Brisbane

14th-16th September 2012

As part of the AMDFs goal of raising awareness about mitochondrial disease, particularly within the medical community, plans are in place for the AMDF to be represented at the GPCE (General Practitioner Conference & Exhibition) Brisbane on 14th-16th September 2012. This follows on from the awareness raising success achieved by the AMDF at the GPCE in both 2010 and 2011.

The GPCE is the biggest exhibition available for the healthcare industry in Australia.

Global Mitochondrial Disease Awareness Week

16th - 22nd September 2012

Global Mitochondrial Disease Awareness Week is a time where mitochondrial disease related organisations from all around the world join forces to promote our joint cause - to find a cure for mitochondrial disease. The week sees a hive of events internationally and provides a great opportunity to lobby governments to raise the profile of mitochondrial disease.

In 2011 the AMDF was joined by ten other organisations from the likes of Canada, Europe, NZ and the USA and other groups have expressed interest in joining the cause in 2011.

For more information see the Global Mitochondrial Disease Awareness Week website.

Stay in Bed Day

23rd September 2012

To close off Global Mitochondrial Disease Awareness Week, Stay in Bed Day 2012 is scheduled for Sunday 23rd September 2012. This year will see the event build both nationally and internationally with participants already lining up from around the world. Follow the activity in the virtual World Wide Bed - the official Stay in Bed Day Facebook page.

For more information see the Stay in Bed Day website.

GPCE - Melbourne

16-18th November 2012

As part of the AMDFs goal of raising awareness about mitochondrial disease, particularly within the medical community, plans are in place for the AMDF to be represented at the GPCE (General Practitioner Conference & Exhibition) Melbourne on 16-18 November 2012. This follows on from the awareness raising success achieved by the AMDF at the GPCE in both 2010 and 2011.

The GPCE is the biggest exhibition available for the healthcare industry in Australia.

Energy for Life Walkathon - Sydney

November 2012

Come along in November 2012 and join us for a fun filled day at the Energy for Life Walkathon. The event will be held at Manly’s beautiful North Head from 9am to 1pm with two walks available on the day:

The Family Fun Walk (5km - pram/wheelchair accessible)
The Explorer's Trek (8km)

For more information see the Energy for Life Walkathon website or contact Sean Murray:

Phone: 0422 819 975
Email: sean.murray@amdf.org.au

Energy for Life Walkathon - Perth

November 2012

2011 saw the first Energy for Life Walkathon kick off in Perth with over 150 participants in what turned out to be a great family day.

Plans are in place to run the event again in 2012.

For more information see the Energy for Life Walkathon website or contact Penny Andrews:

Phone: 0458 728 655; Email: penny.andrews@amdf.org.au

Future Events

The AMDF is working on putting together the details of several other regional, national and global events.

These include:

Mito Information Day - Perth

Mito Information Days in Perth have been a well received resource within the community. More are planned in 2012. For more information contact Penny Andrews:

Phone: 0458 728 655; Email: penny.andrews@amdf.org.au

AussieMit 2012 - Melbourne

Every two years, scientists and clinicians from around Australia gather to collaborate on all things mitochondrial disease. In 2010 AMDF sponsored the event by offering prizes for the best presentations and looks forward to supporting the event again in 2012.

For further information please contact Sean Murray.

Phone: 0422 819 975
Email: sean.murray@amdf.org.au

Planning Your Own Event?

Are you planning an event in support of the AMDF? If so, please let us know and we can promote the event including through the AMDF website.