Media

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MEDIA

All media enquiries should be directed to: Carol Moore of Moore PR T: (02) 9560 2826 M: 0402 382 363 E: carolmoore@moorepr.com.au

This page displays recent media items. For older media items, please visit the media archive.

5 September 2017 Media release on AMDF’s Global Mitochondrial Disease Awareness Week initiatives
Read a media release on AMDF’s Awareness Week 2017 events, including Light Up for Mito and Stay in Bed Day.


7 August 2017 Media release on research into mitochondrial disease diagnosis
Read a media release on a new genetic testing approach that could improve diagnosis for mitochondrial disease.


25 July 2017 AMDF statement on the plight of baby Charlie Gard
Read a statement from AMDF CEO Sean Murray regarding the need for more research funding in the wake of baby Charlie’s plight.


23 June 2017 AMDF’s response to Senator Hanson’s comments
Read AMDF’s response to Senator Pauline Hanson’s comments regarding the education of children with disabilities.


1 June 2017 INSPIRE article on genomic sequencing
Read an article published in Research Australia’s INSPIRE magazine that discusses why pursuing a diagnosis of mitochondrial disease is important, and how genomic sequencing can improve diagnoses in Australia.


24 May 2017 RCPA article on the AMDF-AGHA partnership
Read an article from the The Royal College of Pathologist of Australasia’s monthly newsletter that discusses AMDF’s partnership with the Australian Genomic Health Alliance, and how the project this project will enable every person with a strong suspicion of mito to gain a definitive diagnosis via genetic testing.


17 March 2017 First clinical mitochondrial donation licence granted in UK
Read a media release from AMDF regarding the first clinical mitochondrial donation licence in the UK. AMDF applauds the announcement as a major step forward for the global mitochondrial disease community.


16 January 2017 News.com.au story on the Beard family
Read a story about Pippa and Tony Beard. The Beard family have a history of mito, with Pippa being severely affected. Pippa’s sister Toby experiences mild symptoms and would love have a child of her own. Mitochondrial donation could ensure that she doesn’t pass on this debilitating disease to her future child.

Read a media release from AMDF regarding the latest updates from the Human Fertilisation and Embryology Authority (HFEA). The HFEA have officially authorised the use of mitochondrial donation in the UK. AMDF hopes that the Australian government will follow suit and legalise the IVF technique.


Read a media release from AMDF that discusses AMDF’s stance on mitochondrial donation in light of the Human Fertilisation and Embryology Authority’s approval of the technique in the UK.


28 November 2016 MamaMia story on mitochondrial donation
Read a story on MamaMia about mitochondrial donation. In the story, Alice Gibson, who has mitochondrial disease (mito), talks about difficulty of planning a family without access to this revolutionary IVF technique.


19 November 2016 ABC Beyond the Lab segment on mitochondrial donation
Listen to ABC’s ‘Beyond the Lab’, featuring developments in prenatal screening and IVF techniques, including mitochondrial donation.


28 September 2016 ABC News 24 interview with Sean Murray
Watch an interview with AMDF CEO Sean Murray that discusses the recent news of the first successful birth of a child using mitochondrial donation.


22 September 2016 612 ABC Brisbane radio interview with Sean Murray
Listen to AMDF CEO Sean Murray discuss Stay in Bed Day and mitochondrial disease on 612 ABC Brisbane.


20 September 2016 Bayside Star article on the Levett family and Stay in Bed Day
Read an article in the Bayside Star featuring Bronwynn and Steve Levett,who discuss their experience of mito and Stay in Bed Day


18 September 2016 Newcastle Herald article on Stay in Bed Day
Read an article in the Newcastle Herald about the Meyers family, who participated in Stay in Bed Day in memory of their daughter.


15 August 2016 Channel 10 Brisbane News live cross to Ari’s Food Safari
Watch a live cross to Ari’s Food Safari, an event that raises funds for AMDF, from Channel 10 Brisbane News.


29 July 2016 Mitochondrial Disease News article on gene therapy for LHON patients
Read Mitochondrial Disease News’ article on the use of gene therapy to replace faulty genes in patients with Leber’s hereditary optic neuropathy (LHON).


28 July 2016 Sydney Morning Herald article on genome testing
Read the Sydney Morning Herald’s article on the development of Australia’s first whole genome testing service, which can analyse all 20000 genes in a single blood test.


15 July 2016 Mitochondrial Disease News article on light therapy for mitochondria
Read Mitochondria Disease News’ article on NovoTHOR, a light therapy device, which won the Invention Award at the recent Elite Sports Rehabilitation Expo 2016.


23 May 2016 Mitochondrial Disease News article on Mitochondrial Donation
Mitochondrial Disease News have published an article detailing a new study on mito donation and DNA compatibility. Read the article here.


7 February 2016 Radio 3RRR Segment on Mito
Listen to AMDF PhD scholar Nicole Lake being interviewed on 3RRR radio station. She discusses her current work on mitochondrial disease, specifically Leigh Syndrome. She also discusses mitochondrial donation.


 

The AMDF is pleased to provide Australian experts for interview and comment on mitochondrial disease. Please contact Carol Moore of Moore PR T: (02) 9560 2826 M: 0402 382 363 E: carolmoore@moorepr.com.au