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17 March 2017 First clinical mitochondrial donation licence granted in UK
Read a media release from AMDF regarding the first clinical mitochondrial donation licence in the UK. AMDF applauds the announcement as a major step forward for the global mitochondrial disease community.
Read a story about Pippa and Tony Beard. The Beard family have a history of mito, with Pippa being severely affected. Pippa’s sister Toby experiences mild symptoms and would love have a child of her own. Mitochondrial donation could ensure that she doesn’t pass on this debilitating disease to her future child.
Read a media release from AMDF regarding the latest updates from the Human Fertilisation and Embryology Authority (HFEA). The HFEA have officially authorised the use of mitochondrial donation in the UK. AMDF hopes that the Australian government will follow suit and legalise the IVF technique.
Read a media release from AMDF that discusses AMDF’s stance on mitochondrial donation in light of the Human Fertilisation and Embryology Authority’s approval of the technique in the UK.
Read a story on MamaMia about mitochondrial donation. In the story, Alice Gibson, who has mitochondrial disease (mito), talks about difficulty of planning a family without access to this revolutionary IVF technique.
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Listen to ABC’s ‘Beyond the Lab’, featuring developments in prenatal screening and IVF techniques, including mitochondrial donation.
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Watch an interview with AMDF CEO Sean Murray that discusses the recent news of the first successful birth of a child using mitochondrial donation.
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Listen to AMDF CEO Sean Murray discuss Stay in Bed Day and mitochondrial disease on 612 ABC Brisbane.
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Read an article in the Bayside Star featuring Bronwynn and Steve Levett,who discuss their experience of mito and Stay in Bed Day
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Read an article in the Newcastle Herald about the Meyers family, who participated in Stay in Bed Day in memory of their daughter.
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Watch a live cross to Ari’s Food Safari, an event that raises funds for AMDF, from Channel 10 Brisbane News.
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Read Mitochondrial Disease News’ article on the use of gene therapy to replace faulty genes in patients with Leber’s hereditary optic neuropathy (LHON).
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Read the Sydney Morning Herald’s article on the development of Australia’s first whole genome testing service, which can analyse all 20000 genes in a single blood test.
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Read Mitochondria Disease News’ article on NovoTHOR, a light therapy device, which won the Invention Award at the recent Elite Sports Rehabilitation Expo 2016.
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Mitochondrial Disease News have published an article detailing a new study on mito donation and DNA compatibility. Read the article here.
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Listen to AMDF PhD scholar Nicole Lake being interviewed on 3RRR radio station. She discusses her current work on mitochondrial disease, specifically Leigh Syndrome. She also discusses mitochondrial donation.