Mito Stories


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Our Stories

 

 

Darren was fit and healthy when he began struggling to get in and out of a chair. Just one month later, Darren fell into a coma.

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Alice was in her early 20s when she experienced pain and fatigue. When the pain didn’t subside, she underwent many tests before receiving a diagnosis of mito.

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Melissa began suffering from fatigue and was unable to keep up with her work. After years of uncertainty, she received a diagnosis of mitochondrial disease.

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Noah was born at just 29 weeks. At a young age, Noah began to suffer from symptoms, including failing to thrive and stroke-like episodes.

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ron

In 2005, Ron passed out at work a number of times. There didn’t seem to be any obvious reason as he was pretty healthy at the time.

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Jorja-Rose was born at 32 weeks. Over the first few months of her life, Jorja seemed ‘floppy’, and struggled to keep her head up.

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ruby

Ruby was only a few days old when she began to suffer from ongoing seizures. She sadly passed away from mitochondrial disease complex IV.

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Aidan was placed on life support after his body failed to cope with a common cold. After two years, of symptoms, he was diagnosed with mito. 

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Miranda failed to thrive and suffered from seizures and poor vision. It took four years to determine what caused her symptoms.

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After Chloe’s GP noticed a heart murmur, she was referred to a paediatric cardiologist. She was then quickly admitted to hospital.

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Luca Edwards

Luca spent the first ten months of his life in and out of hospital, undergoing innumerable tests before doctors finally suspected mito.

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Lachlan and Riley were numbers six and seven in Australian to be diagnosed with Fumerase Deficiency, a rare type of mito.

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John has LHON which caused him to go blind at the age of 47. His family have a history of LHON.

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Kara’s mother thought that Kara had a bad case of gastro – she never imagined it would be her daughter’s first MELAS stroke.

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Shayli and Pam 300 x 300 thin border

Pam’s daughter sadly passed away from MELAS, a type of mito, at 19. Pam, and other family members, also suffer from MELAS.

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After years of declining energy levels, Sarah was diagnosed with mitochondrial myopathy. Sarah was glad to have a diagnosis.

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Everything changed for Ari’s family two days after his fourth birthday. Ari was particularly tired, and had been recovering slowly from tonsillitis.

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Taylah 200 x 200

It took four years for Taylah’s family to receive her diagnosis of Leigh syndrome. Taylah suffers from dystonia, speech difficulties, and low energy.

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Jack was diagnosed with a mitochondrial disorder at seven months. He experienced low muscle tone, muscle weakness, and fatigue.

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Will 300 x 300 thin border

When Will was born, doctors noticed he had tachypnoea or rapid breathing. He also had trouble feeding and struggled to gain weight.

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Margie’s son, Alex passed from what was then an unknown illness. Years later, her daughter, Rose, began suffering seizures.

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Gaby’s mother noticed subtle signs during pregnancy, and after birth that indicated that things were not going “according to the norm”.

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Archer struggled to put on weight, and suffered from health complications. Sadly, Archer passed away from mito just shy of eight months old.

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When Dion reached eight months his parents realised that something was wrong. After many visits to doctors and specialists, Dion was diagnosed with Leigh syndrome

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Rex 300 x 300

Rex was diagnosed with Leigh syndrome when he was eight months after failing to meet his milestones.

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Tate was four months old when his parents noticed he wasn’t gaining a lot of weight and fussed a lot at feeding times.

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Jacinta was slow to reach her milestones. At eleven months, she had an operation and had to be resuscitated.

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Steven and Penny have four children. While their daughters are in good health, both William and Thomas suffer from Leigh syndrome, a form of mito.

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Tom 300 x 300

Tom is full of laughter and smiles, yet he has had a complicated medical history and has undergone over 35 medical procedures.

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In May 1997 everything changed for the Beard family when their daughter, Pippa, woke up in severe pain, unable to move.

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Pippa 300 x 300

Pippa seemed a healthy happy 19 year old. One morning after enjoying a party Pippa woke in severe pain and could hardly move.

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Noah and Harrison

Noah and Harrison have the mitochondrial ATPase6, T8993G mutation. Noah presents clinically with Leigh disease, where T8993G is considered the cause in 10-20% of cases.

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Although she lacked hand-eye coordination and was not physically robust, there was no indication of medical problems for Judy until she was an adult.

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Peter was one of five siblings, all of whom have been diagnosed as having MELAS – a form of mitochondrial disease.

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