We regularly hold information nights in Brisbane, Sydney, Perth & Melbourne.
Corporations are encouraged to partner with the AMDF, to benefit the entire mito community.
Mito News
World Stay in Bed Day 2011
25 September 2011
AMDF celebrate the international launch of Stay in Bed Day...
Stay in Bed Day 2011 saw the exciting launch of the event on a global stage. This lead to an increase in participation and raised further awareness of mitochondrial disease.
Global Mitochondrial Disease Awareness Week 2011
18-24 September 2011
AMDF partners with international organisations to raise awareness of mito...
Global Mitochondrial Disease Awareness week 2011 took place from the 18th-24th September. The AMDF utilised this opportunity to raise awareness of mitochondrial disease, both on a national and international level.
The AMDF highlighted the need of further funding from the Australian government, and appealed to local, state and federal MPs.
In a bid to raise awareness on an international stage, the AMDF partnered with multiple organisations around the world- bringing us under for a powerful unified umbrella. This in turn, resulted in further awareness of other mito related events, welcoming us through our first international Stay in Bed Day.
Learn more about the Global Mitochondrial Disease Awareness Week by clicking here.
AMDF at the Sydney Running Festival
18 September 2011
AMDF runners show their support at the 2011 Sydney Running Festival...
Sunday 18th September saw 55 people run for mito, at Blackmores Sydney Running Festival. Wearing bright mito shirts, our runners completed the 4km walk and the 9km run. One person successfully completed the 21 km run, and another even did the full 42 km marathon.
Well done runners and congratulations on this great achievement!
AMDF Footy Tips 2011 Winners Announced
22 July 2011
We have a book out...
With the final twist in what has been a most interesting year of AMDF Footy Tipping we have a "book out". That's right folks, the last two in the comp have booked out and will now take half the prize each. So a big well done to both players who have battled hard to get themselves into a winning position. We think it was a very sensible decision at this stage of the comp, best to get half of something than get nothing of the whole thing.
We would like to thank everyone for taking part in the AMDF Footy Tips comp for 2011. We will take a break now and come back next year with a bigger and better comp. There are plenty of players we've spoken to that can't wait to start the comp in 2012 because they feel "if it wasn't for that one dumb pick" they would still be in the comp ... yes we know - we all think it! A special thanks to Michael Crosgrove who won the comp with Rod Cronan, Michael has donated his winnings back to AMDF and we are extremely gratful. Fantasic!!
Pictured: AMDF's Paul Clausen (left) presenting the winner's cheque to Rod Cronan.
Euromit
20 June 2011
AMDF Scientific and Medical Advisory representatives head to Spain for the eight Euromit Conference...
From June 20th to 23rd, members of the AMDF Scientific and Medical Advisory Panel, including; Professor John Christodoulou, Doctor Phillipa Lamont, Professor Carolyn Sue, and Professor David Thorburn represented the foundation at the eighth European Meeting on Mitochondrial Pathology held in Zaragoza, Spain.
UMDF Symposium
14 June 2011
AMDF strengthens ties with UMDF at the 2011 Mitochondrial Medicine conference in Chicago...
Each year, the United Mitochondrial Disease Foundation brings together clinical and basic science researchers sharing an interest in mitochondria from all over the world. In June, President and Chairman of AMDF, Doug Lingard along with Chair of the fundraising committee, Margie Lingard represented the AMDF attending the 2011 Mitochondrial Medicine conference in Chicago.
Doug and Margie joined hundreds of participants from many fields, including biochemistry, genetics, eurosciences, cardiology, cancer, diabetes, nephrology, hematology, pediatrics and aging research.
During the symposium, patients and family attendees were given many opportunities to meet some of the top mitochondrial specialists from around the world.
This year the event included a three-day scientific program, a two-day patient/family program and a one-day scientific/clinical mitochondria and diabetes program.
Click for more information about Mitochondrial Medicine 2011
GPCE
28 May 2011
AMDF presence at Sydney’s GPCE brings mitochondrial disease to the attention of GPs.
On the weekend of the 20th of May, the AMDF held a small information stand at the exhibition component of the General Practitioner Conference and Exhibition at Sydney’s Olympic Park.
Read more about AMDF's presence at GPCE
Awareness Report
17 May 2011
How aware is the Australian public about Mito?
One of the AMDF’s founding objectives is to increase the awareness of Australians and indeed global citizens, about mitochondrial disease.
Published in April, this year’s research report into that awareness of mitochondrial disease, gave the AMDF a thorough indicator of just who, and how many Australians know about mito.
The study run by Galaxy Research highlighted that:
- Overall, one in three Australians are aware of mitochondrial disease when prompted.
- Awareness of mitochondrial disease is spread across the community by age and gender.
- Among those who say that they are aware of the disease, four in ten (44%, compared to 42% in 2010) are able to show an actual understanding of it, saying that it is ‘a serious disease that robs the body cells of energy and can affect various organs.’
- The youngest group of participants in the study (16-24 years) have the highest level of understanding of mitochondrial disease
Download a pdf of the Mitochondrial Disease Awareness Report
Research Funds
10 May 2011
Medical Research Funding Cuts Abandoned
Eight weeks of overwhelming community opposition to planned government cuts to health and medical research have seen the Australian Government protect medical research funding in the 2011-12 budget.
Read more about how the AMDF and its supporters contributed to the safeguarding $850 million of medical research funding. Read more.
AMDF Presents at GP Conference
15 November 2010
The AMDF had stands at the General Practitioner Conference and Exhibition (GPCE) in Sydney in May and Melbourne in November.
Most of the GPs who passed the AMDF stands wanted to learn more about mito disease. They are the first port of call in the diagnosis of mito patients, who will usually describe a merry-go-round of specialists for years before someone eventually thinks of mito disease. This is a big step towards educating GPs so that patients are quickly diagnosed and well managed. Thanks to Professor Carolyn Sue for an informative lecture about mitochondrial disease and Mr Michael Fahey, a Melbourne mito specialist for his address on Mitochondrial Disease – An Underestimated Medical Enigma.
Today Tonight Feature Story on Mitochondrial Disease
11 November 2010
Leigh's Disease sufferers Will and Thomas Andrews' story is showcased, along with their mother Penny’s views on how they cope with the challenges of living with a mitochondrial disease.
Mito Information Day - Perth
30 October 2010
On Saturday, 30th October, AMDF WA held it's first Mitochonrial Information Day in Perth for families and friends who have been affected by the disease. Attendees were welcomed by Penny Andrews, a mother of two sons with the mitochondrial disorder, Juvenile Leigh's Disease and a Board Member of AMDF.
Read more about the Mito Information Day in Perth
Local Cafe Supports AMDF
20 September 2010
The Three Spoons Cafe located in Sydney's Concord West Village conducts awareness and fundraising event in support of mitochondrial disease and the AMDF.
Read more about this innovative event by the Three Spoons Cafe.
Running on Empty
18 September 2010
MitoCanada’s 100km ultra marathon raises over $30 000!
On September 18th 2010, a group of dedicated runners completed a 100km mountain trail run through Kananaskis Backcountry, near Calgary in the south of Canada. Only 5 months after MitoCanada achieved its official charitable status, Blain Penny, founder of MitoCanada, and a group of companions infused with energy, ran over and through mountain passes for over twenty hours in freezing weather. Together the group crossed the finish line exhausted, but exhilarated by the feat they had just achieved- all to raise awareness about mitochondrial disease.
The ultra marathon event ran in tandem with the ‘Running on Empty’ Mito Walk, which was a more family friendly affair run in Ontario. The event raised close to $35 000 for MitoCanada and was clearly a huge success!
Link to more information about the Running on Empty Family Walk
Watch the trailer on the ultra marathon on youtube
Mito News on You Tube
15 September 2010
A seven-minute feature video on mitochondrial disease and Stay in Bed Day has been prepared by UTS student Michelle Rumery and her colleague Ellie.
Thank you to all the interviewees, particularly Karen Crawley and Carolyn Sue who spent considerable time doing interviews and filming, and to Stay in Bed Day ambassador John Howard for his great finale.
Stay in Bed Day
22 August 2010
One of Australia's funniest and best known comedians, Julia
Morris has become a Stay In Bed Day ambassador. She's busy "practising" for this important day.
As Julia said, "Stay in Bed Day is more fun & much less exhausting
than doing a charity run! People can get sponsored to stay in bed all
day - does it get any better than that? Who wants to spend the day on
August 22nd with me in bed? Hello ... anyone?"
Actor John Howard, back between the sheets for his second Stay in Bed
Day, has the perfect solution for anyone not able to sleep in: "Let me
get down and do the hard yards for you!"
Home in WA Feature Story Promotes Stay in Bed Day
4 August 2010
The upcoming Stay in Bed Day as well as mitochondrial disease are promoted in this "Home in WA" feature story.
Western Australian Branch Launched
28 May 2010
The WA branch of AMDF was launched on Friday 28 May 2010 with a cocktail party at the Peppermint Grove Tennis Club in Perth.
Read more about the WA Branch Launch
Mito Information Day - Melbourne
1 May 2010
About 50 people attended the Mitochondrial Information Day on Saturday 1st May 2010 at the Murdoch Children’s Research Institute, Royal Children’s Hospital, Melbourne.
Read more about the Mito Information Day in Melbourne
Mito Information Day - Brisbane
10 April 2010
More than fifty people gathered in the Auditorium of the Royal Children’s Hospital in Brisbane on Saturday April 10th for the inaugural Information Day on Mitochondrial Disease in Queensland. They were there to listen to a series of experts speak on the disease: its causes, how it manifests, the latest research, and what the future holds. Most of those present were people affected by the disease
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