This page contains news items from 2018 and 2017. For older new items, please visit the news archive.
15 May 2018 Why you should join the Mito Registry, if you have been diagnosed with or are suspected to have mitochondrial disease (mito).
10 May 2018 Trek the Great Wall of China to cure mitochondrial disease (mito) – register now!
2 May 2018 Register now for Australia’s most important conference into mitochondrial research!
30 Article 2018 AMDF has launched Mito 4 Kids, a school education program about mitochondrial disease (mito) for children in years K-6.
26 April 2018 AMDF has approved funding for four new exciting projects into areas such as genetic testing, standards of care, whole genome sequencing and Sengers syndrome.
18 April 2018 AMDF is working with the International Centre for Community-Driven Research to understand the experience of mito patients and what they want from future treatment, care and support.
16 April 2018 Curtin University (WA), the University of Sydney (NSW) and the Sydney Children’s Hospital at Westmead (NSW) invite the mito community to participate in research studies.
April 2018 Read AMDF’s position on the use of genetic information by life insurers in Australia, in light of the recent Parliamentary Inquiry into the life insurance industry (March 2018).
28 February 2018 AMDF thanks Dave Cleary for representing WA on the AMDF Board since 2014 and warmly welcomes new representative Fiona Elmer and alternate Dan Loden.
16 February 2018 Stealth BioTherapeutics’ interventional study on Primary Mitochondrial Myopathy (PMM) treatment will no longer take place in Australia.
AMDF Ambassador Pat Cummins will represent Australia in the first test of the Ashes.
4 August 2017 Mito Warrior is an outer space adventure game develop by Stealth BT to teach people about mitochondria and mitochondrial disease.
With great sadness, AMDF learnt the news of the passing of Rose Lingard on Friday 9 June 2017.
Read AMDF’s position statement and summary of the Federal Budget, and how it will impact the mito community.
On 2 April NSW Premier Gladys Berejiklian and Minister for Health Brad Hazzard pledged two million dollars of funding to establish Big Bear Cottage – a hospice for 18 to 30 year olds.
10 April 2017 AMDF is pleased to announce a new research opportunity for patients with suspected mitochondrial disease. The project aims to provide patients with a genetic diagnosis, and determine the most effective way to diagnose mito.
3 April 2017 A number of international patient forums are available to the Australian mito community in 2017.
27 February 2017 AMDF is seeking feedback via an online survey, from people with a personal connection to mito to enable us to improve and expand on our services. The survey will take approximately 20 minutes, and your responses can remain anonymous. Click here to take the survey.
19 February 2017 On 19 February, The Essendon Royals Soccer Club hosted a party in celebration of Luca’s second birthday. Luca was diagnosed with mitochondrial disease when he was 10 months old.
3 January 2017 The Australian Mitochondrial Disease Foundation (AMDF) welcomes the introduction of the Australian Charities and Not-for-profits Commission (ACNC) ‘Tick of Charity Registration’.