Back to School – Parent and Teacher Resources




Often the first time teachers hear about mitochondrial disease (mito) is when a child in their school is diagnosed.  It can be difficult to understand mito, as it can be an invisible illness.  AMDF resources can help teachers understand what mito is and how to care for an affected student.

Picture1Sample letter to your child’s teacher (Download, Word Document, 20KB)

This letter template will help parents and carers inform their child’s teacher about what mitochondrial disease, what symptoms the child has, and what the school and teacher can do to help.

The following articles are not endorsed by the AMDF but may be useful when communicating with school staff.

Picture1Students Living with a Genetic Condition: A Guide for Parents

This guide, developed by Genetic Alliance (U.S), assists parents in developing letters for their child’s teachers, coaches/P.E teachers and school nurses. As this is a resources from the U.S, some aspects might not be applicable or may need to be adjusted to suit your child’s situation.

Picture1Understanding the energy/sensory connection: mitochondrial disease

A short article explaining how children work when suffering with mitochondrial disease. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mitochondrial disease.

Picture1Sample Letter to Educators: Mitochondrial Disorder and its Implications for Teachers of Mainstreamed Students

A short article for teachers, explaining adjustments that could be made in the classroom for students with mitochondrial disease.

You may find it appropriate to supply your child’s school with other AMDF resources on mitochondrial disease. Click here to access our Mito Resources page.