Back to School – Parent and Teacher Resources




Often the first time teachers hear about mito is when a child in their school is diagnosed.  It is a challenge to educate schools about this complex disease.  AMDF has developed a template letter for parents to provide to their child’s school. This letter should be completed with the assistance of your child’s specialists.

Sample letter to your child’s teacher

The following articles are not endorsed by the AMDF but may be useful when communicating with school staff.

Students Living with a Genetic Condition: A Guide for Parents

This guide, developed by Genetic Alliance (U.S), assists parents in developing letters for their child’s teachers, coaches/P.E teachers and school nurses. As this is a resources from the U.S, some aspects mights not be applicable or may need to be adjusted to suit your child’s situation.

Understanding the energy/sensory connection: mitochondrial disease

A short article explaining how children work when suffering with mitochondrial disease. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mitochondrial disease.

Sample Letter to Educators: Mitochondrial Disorder and its Implications for Teachers of Mainstreamed Students

A short article for teachers, explaining adjustments that could be made in the classroom for students with mitochondrial disease.

You may find it appropriate to supply your child’s school with the following AMDF resources.


AMDF Flyer

The AMDF general flyer which details the work the Foundation is involved in, as well as information on mitochondrial disease and its prevalence.

Download (PDF format, 1.79MB)



mito-childrens-book-thumbA Little Book About Mito

Written and illustrated by long-time AMDF supporter Martine Vanderspuy with the help of Dean Crawley, A Little Book About Mito is a delightfully simple story to explain mitochondrial disease (Mito). This book has proven one of the most sought after resources from the patient and carer community. While intended for children, many adults have found this booklet most useful in coming to terms with the complexity of mitochondrial disease through the use of simple, concise language.

Download (PDF format, 1.2MB)


mito-fact-sheet-thumbMitochondrial Disease Fact Sheet

Developed by the AMDF to help provide the facts about mitochondrial disease, the fact sheet is regularly updated as more information comes to hand. A must have resource to help understand mitochondrial disease.

Download (PDF format, 130KB)