Back to School – Parent and Teacher Resources
Parent And Teacher Resources
Often the first time teachers hear about mitochondrial disease (mito) is when a child in their school is diagnosed. It can be difficult to understand mito, as it can be an invisible illness. AMDF resources can help teachers understand what mito is and how to care for an affected student.
Written and illustrated by long-time AMDF supporter Martine Vanderspuy with the help of Dean Crawley, A Little Book About Mito is a delightfully simple story to explain mitochondrial disease (Mito). This book has proven one of the most sought after resources from the patient and carer community. While intended for children, many adults have found this booklet most useful in coming to terms with the complexity of mitochondrial disease through the use of simple, concise language. Download (PDF format, 1.2MB)
This letter template will help parents and carers inform their child’s teacher about what mitochondrial disease, what symptoms the child has, and what the school and teacher can do to help.
The following articles are not endorsed by the AMDF but may be useful when communicating with school staff.
This guide, developed by Genetic Alliance (U.S), assists parents in developing letters for their child’s teachers, coaches/P.E teachers and school nurses. As this is a resources from the U.S, some aspects might not be applicable or may need to be adjusted to suit your child’s situation.
A short article explaining how children work when suffering with mitochondrial disease. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mitochondrial disease.
A short article for teachers, explaining adjustments that could be made in the classroom for students with mitochondrial disease.
You may find it appropriate to supply your child’s school with other AMDF resources on mitochondrial disease. Click here to access our Mito Resources page.