Upcoming Events

 

Upcoming events

 

Select a month or scroll down to view upcoming events

May  August November
June September December
July October Ongoing events

To view events organised by our supporters, visit the supporter events page.


MAY

Mito Connect Call – Mitochondrial Disease and Exercise

11 May 2017

A Mito Connect Call on exercise and mitochondrial disease will be held on 11 May.

AMDF is pleased to facilitate this call with guest speaker  Shannen Stanes. Shannen is a physiotherapist from Therapy Focus in Perth, WA. She works with children and adults in a variety of settings to improve independence, function, and quality of life for her clients. She also supports those around her clients to assist with achieving these goals.

Shannen has provided support in many areas, including mobility, gross motor skills, exercise and equipment.

Shannen will answer questions at the end of the call. To ensure your question is answered, please email any questions to catherine.lucas@amdf.org.au by  Wednesday 3 May. 

Date: 11 May
Time: 6:30pm AEST
RSVP: To Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What to expect on a Mito Connect Call

An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.


The Bloody Long Trek – China 2017

May 2017
In 2017, AMDF will be hosting the trip of a lifetime: The Bloody Long Trek, China 2017.

Take on the Great Wall and with every step you take raise vital funds to support Australian sufferers and their families and bring us closer to a cure.

Highlights include:
• Trekking the Great Wall in the shadow of otherworldly mountains
• Discovering the contrasts of ancient and modern Beijing, from Tiananmen Square to the grand imperial architecture of the Forbidden City
• Losing yourself in a maze of overgrown trees as you navigate some of the most remote parts of the Great Wall
• Raising vital funds to provide essential support services and take us closer to a cure
Visit The Bloody Long Trek website to find out more.

JUNE

binära optioner skatteregler Mito Connect Call 

8 June 2017

A Mito Connect Call will be held on Thursday 8 June at 10:30am AEST. The call is an opportunity for anyone affected by mito to connect with others and share experiences.

The call will be held in the morning in response to feedback from the mito community. If you would like to suggest a date or time for future calls, please contact Catherine Lucas.

trendo binaire opties Date: 8 June
binära optioner vad är Time: 10:30am AEST
option navigator demo RSVP: To Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

What to expect on a Mito Connect Call

An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.


För Viagra 120 mg utan recept Sydney Support Group Meeting: Paediatrics

19 June 2017

A Support Group Meeting will be held on 19 March, 2017, prior to the Sydney Mito Information Day.

Support groups are friendly informal sessions, providing an opportunity to share ideas, ask questions and hear from others who may have similar experiences.

This support group is aimed at the http://wilgenrijk.nl/?iters=come-fare-soldi&15e=89 come fare soldi parents and carers of children affected by mito. Children are also welcome to attend.

demoverze binární opce Date: Monday 19 June, 2017
buy periactin in new zealand Time: TBD
macd opzioni binarie Where: TBD كيفية كتابة مقال

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


الخيارات الثنائية المعلم Sydney Mito Information Day: Paediatrics 

19 June 2017

A Mito Information Day will be held in Sydney on 19 June, 2017. It will focus on  binära optioner tjäna pengar paediatrics.

Children affected by mito, their parents, and carers are encouraged to attend.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

Speakers include:  Dr Shanti Balasubramaniam (Paediatric Metabolic Geneticist), Dr Carolyn Ellaway (Paediatric Metabolic Specialist) and Dr Carolyn Broderick (Paediatric Sports and Exercise Medicine Specialist).

opzioni binarie in banca Date: Monday 19 June, 2017
zoom binary options uk Time: Afternoon, exact time TBC
kan man köpa Viagra receptfritt i danmark Where: Sydney Children’s Hospital, Randwick

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


strategie per vincere con le opzioni binarie Save the date: Melbourne Support Group

24 June 2017

A support group meeting will be held in Melbourne on Saturday 24 June. Support groups are an opportunity for members of the mito community to come together and share experiences and advice, and meet others who know what living with mito, or caring for someone with mito can be like.

More details will be provided shortly.

optiontime binary Date: Saturday 24 June
http://dijitalkss.com/wp-json/oembed/1.0/embed?url=http://dijitalkss.com/ice-bucket-challenge‬dan-11-sosyal-medya-dersi/ video opzioni binarie strategie Time: TBC
Where: TBC

To express your interest, please email Catherine at catherine.lucas@amdf.org.au


JULY

Check back soon for upcoming events!


AUGUST

The Bloody Long Walk Brisbane

13 August 2017

The Bloody Long Walk is back in Brisbane in 2017! Walk, jog, or run 35km in some of Brisbane’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney East

27 August 2017

The Bloody Long Walk is back in Sydney East in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


SEPTEMBER

The Bloody Long Walk Perth

10 September 2017

The Bloody Long Walk is back in Perth in 2017! Walk, jog, or run 35km in some of Perth’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


Global Mitochondrial Disease Awareness Week

17-23 September 2017

Global Mitochondrial Disease Awareness Week is a week marked with educational, fundraising and advocacy efforts designed to raise awareness about mitochondrial disease (mito).

For the second year, #Lightupformito, will run. The event will see monuments around the world lit up green to raise awareness. This year, the event will attempt to break the world record for the most monuments lit up in a 24 hour period.

On 16 September, the following Australian monuments will be lit up for #lightupformito:

  • Darling Quarter (NSW)
  • Telstra Tower on Black Mountain (ACT)
  • Old Parliament House (ACT)
  • Perth Council House (WA)
  • Deakin University (VIC)
  • The Drum Theatre (VIC)

You can be a part of the world record attempt and raise awareness about mito by getting involved. If you can help secure a monument to be lit up in your area, contact rebecca.davis@amdf.org.au


OCTOBER

The Bloody Long Walk Canberra

15 October 2017

The Bloody Long Walk is back in Canberra in 2017! Walk, jog, or run 35km in some of Canberra’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Adelaide

22 October 2017

The Bloody Long Walk is back in Adelaide in 2017! Walk, jog, or run 35km in some of Adelaide’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


NOVEMBER

The Bloody Long Walk Melbourne

5 November 2017

The Bloody Long Walk is back in Melbourne in 2017! Walk, jog, or run 35km in some of Melbourne’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney North

12 November 2017

The Bloody Long Walk is back in Sydney North in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


DECEMBER

Check back soon for upcoming events!


ONGOING

Albury Support Group

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View the complete list of events.


Planning Your Own Event?

 

Are you planning an event in support of the AMDF?  If so, please let us know and we can promote the event including through the AMDF website.