Upcoming Events

 

Upcoming events

 

Select a month or scroll down to view upcoming events

July October Ongoing events
August November
September December

To view events organised by our supporters, visit the supporter events page.


JULY

Mito Connect Call 

8 July 2017

A Mito Connect Call will be held on Saturday 8 July at 3:30pm AEST. The call will give the parents and carers of children affected by mito the opportunity to connect with others, and share experiences and advice.

Date: Saturday 8 July
Time: 3:30pm AEST
RSVP: To Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call

An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.


AUGUST

The Bloody Long Walk Brisbane

13 August 2017

The Bloody Long Walk is back in Brisbane in 2017! Walk, jog, or run 35km in some of Brisbane’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


SEPTEMBER


Save the date: Adelaide Mito Information Day

9 September 2017

A Mito Information Day will be held in Adelaide on 9 September, 2017.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

Speakers will include Dr Roula Ghaoui, with more to be announced shortly.

Date: Saturday 9 September, 2017
Time: TBA
Where: Women’s and Children’s Hospital, Adelaide

To register your interest, please email Catherine at catherine.lucas@amdf.org.au



Save the date: Adelaide Support Group Meeting

9 September 2017
A Support Group Meeting will be held on 9 September, 2017, following the Adelaide Mito Information Day.

Support groups are friendly informal sessions, providing an opportunity to share ideas, ask questions and hear from others who may have similar experiences.

Anyone affected by mito is welcome to join the support group.

Date: Saturday 9 September, 2017
Time: TBA
Where: TBA

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


The Bloody Long Walk Perth

17 September 2017

The Bloody Long Walk is back in Perth in 2017! Walk, jog, or run 35km in some of Perth’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


Global Mitochondrial Disease Awareness Week

17-23 September 2017

Global Mitochondrial Disease Awareness Week is a week marked with educational, fundraising and advocacy efforts designed to raise awareness about mitochondrial disease (mito).

For the second year, #Lightupformito, will run. The event will see monuments around the world lit up green to raise awareness. This year, the event will attempt to break the world record for the most monuments lit up in a 24 hour period.

On 16 September, the following Australian monuments will be lit up for #lightupformito:

  • Darling Quarter (NSW)
  • Telstra Tower on Black Mountain (ACT)
  • Old Parliament House (ACT)
  • Perth Council House (WA)
  • Deakin University (VIC)
  • The Drum Theatre (VIC)

You can be a part of the world record attempt and raise awareness about mito by getting involved. If you can help secure a monument to be lit up in your area, contact rebecca.davis@amdf.org.au


The Bloody Long Walk Sydney East

24 September 2017 

The Bloody Long Walk is back in Sydney East in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


OCTOBER

The Bloody Long Walk Canberra

15 October 2017 

The Bloody Long Walk is back in Canberra in 2017! Walk, jog, or run 35km in some of Canberra’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Adelaide

22 October 2017

The Bloody Long Walk is back in Adelaide in 2017! Walk, jog, or run 35km in some of Adelaide’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


NOVEMBER

The Bloody Long Walk Melbourne

5 November 2017

The Bloody Long Walk is back in Melbourne in 2017! Walk, jog, or run 35km in some of Melbourne’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney North

12 November 2017

The Bloody Long Walk is back in Sydney North in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


DECEMBER

Check back soon for upcoming events!


ONGOING

Albury Support Group

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View the complete list of events.


Planning Your Own Event?

 

Are you planning an event in support of the AMDF?  If so, please let us know and we can promote the event including through the AMDF website.