Upcoming Events

 

Upcoming events

 

Select a month or scroll down to view upcoming events

March June September December
April July October Ongoing events
May August November

To view events organised by our supporters, visit the supporter events page.


MARCH

Mito Connect Call for Parents and Carers

9 March 2017
A Mito Connect Call for parents and carers will be held on 9 March. The Call will provide a space for parents and carers to connect, and to share experiences, advice, and support from others who understand what living with mito can be like.

AMDF Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues.

The Calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

Date: 9 March 2017
Time: 1:30pm AEDT
RSVP: Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What to expect on a Mito Connect Call:

When you dial in you will be welcomed by an AMDF staff member. Once all participants have dialled in, everyone will have the opportunity to introduce themselves. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.


ASX Thomson Reuters Charity Foundation Raffle

16 March 2017
 ASX Thomson Reuters Charity Foundation has selected the AMDF as a beneficiary for their 2017 raffle. Their series of events is a great opportunity to raise public awareness and funds for mito.

 The raffle winner will find themselves driving around in the height of luxury, in a Lexus RX200T Luxury valued at $80,449.
The second prize is a pair of beautiful south sea cultured pearl and diamond earrings valued at $8,437.
Are you in need of a relaxing break away? Third prize is a fabulous three night Discovery Murray River Cruise valued at $2,524.

The raffle will be drawn on 16 March 2017. Click here for more information or to enter the raffle.


Melbourne Mito Information Day

18 March 2017

A Mito Information Day will be held on 18 March, 2017.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

Presentations will include information for adults, as well as child patients.  The range of topics has been designed to appeal a wide audience, whether you have suspected mito, are newly diagnosed, have lived with mito for some time or have lost a loved one.

Click here to view the preliminary programme. Please note the programme is subject to change.

Date: Saturday 18 March, 2017
Time: 10:00 – 10:15 am registration
Where: Royal Children’s Hospital, Melbourne

To register your interest, please email Catherine at catherine.lucas@amdf.org.au

Are you unable to attend an Info Day due to transport and accommodation costs? AMDF may be able to assist with a travel grant. Click here to find out more.

Print

Thank you to Gandel Philanthropy for their support of the Melbourne Mito Information Day

 


Melbourne Support Group Meeting

18 March 2017

A Support Group Meeting will be held on 18 March, 2017, following the Melbourne Mito Information Day.

Support groups are friendly informal sessions, providing an opportunity to share ideas, ask questions and hear from others who may have similar experiences.

However you are affected by mito: whether you have recently been diagnosed or are seeking a diagnosis, if you have had mito for some time, if you are a carer, or have a child with mito, you are welcome to attend.

Date: Saturday 18 March, 2017
Time: TBD
Where: TBD

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


Adelaide Support Group Meeting

18 March 2017
An Adelaide Support Group Meeting will be held on 18 March.

Support groups are friendly informal sessions that provide an opportunity to share ideas, ask questions and hear from others who may have similar experiences. Support Groups are held regularly.

Date: 18 March 2017
Time: 12:00 pm
Where: TBD
RSVP: Catherine Lucas at catherine.lucas@amdf.org.au


APRIL

Adelaide Support Group Meeting

April  2017
An Adelaide Support Group Meeting will be held on 3 April.

Support groups are friendly informal sessions that provide an opportunity to share ideas, ask questions and hear from others who may have similar experiences. Support Groups are held regularly.

Date: TBD April 2017
Time: 10:00 am
Where: TBD
RSVP: Catherine Lucas at catherine.lucas@amdf.org.au


Mito Connect Call

1 April 2017

A Mito Connect Call will be held on Saturday 1 April. The Call will be held on a Saturday in response to requests from members of the mito community.

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. Teleconferences offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

Date: Saturday 1 April 2017
Time: 3:30 pm AEDT
RSVP: Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What to expect on a Mito Connect Call:

An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.


MAY

The Bloody Long Trek – China 2017

May 2017
In 2017, AMDF will be hosting the trip of a lifetime: The Bloody Long Trek, China 2017.

Take on the Great Wall and with every step you take raise vital funds to support Australian sufferers and their families and bring us closer to a cure.

Highlights include:
• Trekking the Great Wall in the shadow of otherworldly mountains
• Discovering the contrasts of ancient and modern Beijing, from Tiananmen Square to the grand imperial architecture of the Forbidden City
• Losing yourself in a maze of overgrown trees as you navigate some of the most remote parts of the Great Wall
• Raising vital funds to provide essential support services and take us closer to a cure
Visit The Bloody Long Trek website for more information or to express your interest.

JUNE

Sydney Support Group Meeting: Paediatrics

19 June 2017

A Support Group Meeting will be held on 19 March, 2017, prior to the Sydney Mito Information Day.

Support groups are friendly informal sessions, providing an opportunity to share ideas, ask questions and hear from others who may have similar experiences.

This support group is aimed at the parents and carers of children affected by mito. Children are also welcome to attend.

Date: Monday 19 March, 2017
Time: TBD
Where: TBD

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


Sydney Mito Information Day: Paediatrics 

19 June 2017

A Mito Information Day will be held in Sydney on 19 June, 2017. It will focus on paediatrics.

Children affected by mito, their parents, and carers are encouraged to attend.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

Speakers include:  Dr Shanti Balasubramaniam (Paediatric Metabolic Geneticist), Dr Carolyn Ellaway (Paediatric Metabolic Specialist) and Dr Carolyn Broderick (Paediatric Sports and Exercise Medicine Specialist).

Date: Monday 19 June, 2017
Time: Afternoon, exact time TBC
Where: Sydney Children’s Hospital, Randwick

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


JULY

Check back soon for upcoming events!


AUGUST

The Bloody Long Walk Brisbane

13 August 2017

The Bloody Long Walk is back in Brisbane in 2017! Walk, jog, or run 35km in some of Brisbane’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney North

27 August 2017

The Bloody Long Walk is back in Sydney North in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


SEPTEMBER

The Bloody Long Walk Perth

10 September 2017

The Bloody Long Walk is back in Perth in 2017! Walk, jog, or run 35km in some of Perth’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Adelaide

17 September 2017

The Bloody Long Walk is back in Adelaide in 2017! Walk, jog, or run 35km in some of Adelaide’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


OCTOBER

The Bloody Long Walk Melbourne

15 October 2017

The Bloody Long Walk is back in Melbourne in 2017! Walk, jog, or run 35km in some of Melbourne’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


NOVEMBER

The Bloody Long Walk Canberra

5 November 2017

The Bloody Long Walk is back in Canberra in 2017! Walk, jog, or run 35km in some of Canberra’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney East

12 November 2017

The Bloody Long Walk is back in Sydney East in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


DECEMBER

Check back soon for upcoming events!


ONGOING

Albury Support Group

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View the complete list of events.


Planning Your Own Event?

 

Are you planning an event in support of the AMDF?  If so, please let us know and we can promote the event including through the AMDF website.