AMDF Upcoming Events

 

Upcoming Events

Select a month or scroll down to view upcoming events

January 2018 April 2018 July 2018 October 2018
February 2018 May 2018 August 2018 November 2018
March 2018 June 2018 September 2018 December 2018

View ongoing events here.

To view events organised by our supporters, visit the supporter events page


January

Mito Connect Call
18 January 2018
Mito Connect Calls
A Mito Connect Call will be held on Thursday 18 January. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 18 January
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

 

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


February

Mito Connect Call
24 February 2018 

A Mito Connect Call will be held on Saturday 24 February. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 24 February
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.

 


March

Mito Information Day – Perth
3 March 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Perth.

Hear from leading experts in mitochondrial disease (mito), as well as patient stories, and updates from AMDF.

Date: Saturday 3 March
Time: TBD
Venue: Harry Perkins Institute of Medical Research
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113


Mito Connect Call
22 March 2018 

A Mito Connect Call will be held on Thursday 22 March. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

Date: Thursday 22 March
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


April

Mito Information Day – Melbourne
21 April 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Melbourne.

Hear from leading experts in mitochondrial disease (mito), as well as patient stories, and updates from AMDF.

Date: Saturday 21 April
Time: TBD
Venue: Children’s Medical Research Institute
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113


Mito Connect Call
21 April 2018 

A Mito Connect Call will be held on Saturday 21 April. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 21 April
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


May

Paediatric Mito Information Day – Sydney
3 March 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Sydney. It will be focused in paediatric cases of mito

Hear from leading experts in mito, as well as patient stories and updates from AMDF.

Date: Saturday 12 May
Time: TBD
Venue: Sydney Children’s Hospital, Randwick
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113


Mito Connect Call
17 May 2018 

A Mito Connect Call will be held on Thursday 17 May. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 17 May
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


June

Mito Connect Call
16 June 2018 

A Mito Connect Call will be held on Saturday 16 June. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 16 June
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Mito Information Day – Adelaide
23 June 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Adelaide.

Hear from leading experts in mito, as well as patient stories and updates from AMDF.

Date: Saturday 23 June
Time: TBD
Venue: Women’s and Children’s Hospital, North Adelaide
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113


LHON Conference – Nashville
28-29 June 2018 

Image reading Leber's Hereditary Optic Neuropathy

The annual Leber’s Hereditary Optic Neuropathy (LHON) conference will be held in Nashville, Tennessee from 28-29 June.

More information will be provided shortly. Please note this is an international event.

Date: 28-29 June 2018
Time: TBD
Venue: TBD

Visit the event website for further information.


July

Mito Connect Call
19 July 2018 

A Mito Connect Call will be held on Thursday 19 July. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 19 July
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


August

Mito Connect Call
18 August 2018 

A Mito Connect Call will be held on Saturday 18 August. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

Date: Saturday 18 August
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


September

Paediatric Mito Information Day – Melbourne
8 September 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Melbourne. It will be focused in paediatric cases of mito.

Hear from leading experts, as well as patient stories and updates from AMDF.

Date: Saturday 8 September
Time: TBD
Venue: Children’s Medical Research Institute
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113


Mito Connect Call
20 September 2018 

A Mito Connect Call will be held on Thursday 20 September. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 September
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


October

Mito Connect Call
20 October 2018 

A Mito Connect Call will be held on Saturday 20 October. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 20 October
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


November

Mito Connect Call
22 November 2018 

A Mito Connect Call will be held on Thursday 22 November. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 22 November
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


December

Mito Connect Call
20 December 2018 

A Mito Connect Call will be held on Thursday 20 December. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 December
Time: TBD
RSVP: To Rebecca Davis at rebecca.davis@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?

Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Ongoing

Albury Support Group

AMDF Support Groups

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

NDIS National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View a list of events.


Planning Your Own Event?

Are you planning an event in support of the AMDF?  If so, please let us know by emailing info@amdf.org.au