Upcoming Events

 

Select a month or scroll down to view upcoming events

October Ongoing events
November
December

To view events organised by our supporters, visit the supporter events page.


  • OCTOBER

    Mito Connect Call – Mito in the Workplace
    12 October 2017

    A Mito Connect Call will be held on Thursday 12 October 5:00pm AEDT. The call will focus on mito in the workplace. A member of the mito community and their employer will be on the call to give you their experience of working with mitochondrial disease (mito). While every case of mito is different, the call will provide a valuable insight for others in the mito community.

Date: Thursday 12 October
Time: 5:00pm AEDT
RSVP: To Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Walk Canberra

15 October 2017 

The Bloody Long Walk is back in Canberra in 2017! Walk, jog, or run 35km in some of Canberra’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Adelaide

22 October 2017

The Bloody Long Walk is back in Adelaide in 2017! Walk, jog, or run 35km in some of Adelaide’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


NOVEMBER

Mito Connect Call
4 November 2017

A Mito Connect Call will be held on Saturday 4 November at 3:00pm AEDT. The Call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

Date: Saturday 4 November
Time: 3:00pm AEDT
RSVP: To Catherine Lucas at catherine.lucas@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Walk Melbourne

5 November 2017

The Bloody Long Walk is back in Melbourne in 2017! Walk, jog, or run 35km in some of Melbourne’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


The Bloody Long Walk Sydney North

12 November 2017

The Bloody Long Walk is back in Sydney North in 2017! Walk, jog, or run 35km in some of Sydney’s most scenic locations.

Register your interest and be the first to hear when registration opens.

 


Save the date: Brisbane Mito Information Day

25 November 2017
A Mito Information Day will be held in Brisbane on Saturday 25 November, 2017.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

More details will be announced shortly.

Date: Thursday 30 November, 2017
Time: TBA
Where: Wesley Medical Research, 451 Coronation Drive, Auchenflower , QLD 4066

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


Save the date: Royal North Shore Hospital Mito Information Day

30 November 2017
A Mito Information Day will be held in Sydney on 30 November, 2017.

Information Days are a great opportunity to hear from experts in mitochondrial disease (mito) and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments.

More details will be announced shortly.

Date: Thursday 30 November, 2017
Time: TBA
Where: Kolling Institute, Royal North Shore Hospital, Sydney

To register your interest, please email Catherine at catherine.lucas@amdf.org.au

 


DECEMBER

Save the date: Melbourne Paediatric Mito Information Day

9 December 2017
A Mito Information Day will be held in Melbourne on 9 December, 2017. It is aimed at the parents and carers of children affected by mitochondrial disease (mito).

Information Days are a great opportunity to hear from experts in mito and to meet others affected by mito. The presentations will include fundamental information about the disease, and updates on the latest research and treatments for paediatric cases.

More details will be announced shortly.

Date: Saturday 9 December, 2017
Time: TBA
Where: Murdoch Childrens Research Institute, Melbourne

To register your interest, please email Catherine at catherine.lucas@amdf.org.au


ONGOING

Albury Support Group

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View the complete list of events.


Planning Your Own Event?

 

Are you planning an event in support of the AMDF?  If so, please let us know and we can promote the event including through the AMDF website.