Participate in the First Mito Study of its Kind
AMDF is working with the International Centre for Community-Driven Research to understand the experience of mito patients and what they want from future treatment, care and support.
Calling Participants for Research Studies
Curtin University (WA), the University of Sydney (NSW) and the Sydney Children’s Hospital at Westmead (NSW) invite the mito community to participate in research studies.
Changes to the AMDF Board
AMDF thanks Dave Cleary for representing WA on the AMDF Board since 2014 and warmly welcomes new representative Fiona Elmer and alternate Dan Loden.
Melbourne Mito Information Day
21 April 2018
Brisbane Support Group
28 April 2018
Sydney Paediatric Information Day
12 May 2018
Stealth BioTherapeutics’ clinical trial for Barth syndrome treatment
Stealth BioTherapeutics has completed enrolment for its TAZPOWER clinical trial in the USA, a study evaluating elamipretide as treatment for patients with genetically confirmed Barth syndrome.
REATA’s clinical trial for mitochondrial mypothy treatment
A media release on findings from biopharmaceutical company REATA’s clinical trial on maveloxolone as treatment for patients with mitochondrial myopathies.
Women undergo mitochondrial donation in the UK
AMDF is delighted that mitochondrial donation has become a reality for two women in the UK.
Khondrion’s phase II clinical trial results
A media release from Dutch pharmaceutical company, Khondrion, detailing the preliminary results of their phase II KHENERGY study.