AMDF Upcoming Events

 

Upcoming Events

Select a month or scroll down to view upcoming events

April 2018 July 2018 October 2018
May 2018 August 2018 November 2018
June 2018 September 2018 December 2018

View The Bloody Long Walk National Series events here

View ongoing events here

View our supporters’ events here


April

Mito Information Day – Melbourne
21 April 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Melbourne.

Hear from leading experts in mitochondrial disease (mito), as well as patient stories, and updates from AMDF.

Date: Saturday 21 April
Time: 10am
Venue:Murdoch Children’s Research Institute, Royal Children’s Hospital, 50 Flemington Rd, Parkville VIC 3052
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

Click here for the event program.


Black Door Sunday Session (Jamming for a Cause)
22 April 2018

A live jam session is being held on Sunday 22 April at the Cat and Fiddle Hotel in Balmain, Sydney at 1pm until 5pm.

Duncan McGregor and Kate Foster have organised this event in aid of Act for Alana and proceeds are being donated to AMDF.

Enjoy an afternoon with family and friends and help us in the fight against mito.

Date: Sunday 22 April
Time: 1pm – 5pm
Venue: Cat and Fiddle Hotel, 456 Darling St, Balmain NSW 2041

Click here to find out more and donate.

Please direct any queries to Lottie Yeardley at lottie.yeardley@amdf.org.au or call AMDF on (02) 8033 4113.

 

 


Support Group – Brisbane
28 April 2018


A Support Group meeting is being held on Saturday 28 April. The meeting will start in the cafe at 12pm for refreshments and proceed to a meeting room. Members of the mito community will be able to connect in person and share their experiences and seek or offer advice. Support Groups are held around the country, including following Mito Information Days.

 

Date: Saturday 28 April
Time: 12pm
Venue:State Library of Queensland, Stanley Pl, South Brisbane QLD 4101
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Support Groups?
Support Groups offer a casual meet up and a chance to connect with other individuals and families who understand the challenges that the mito community face. Support Groups generally meet every three to six months in a central location. Anyone who has a direct connection with mito is welcome to attend a Support Group.

Click here for more information about Support Groups.


May

Paediatric Mito Information Day – Sydney
12 May 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Sydney. It will be focused in paediatric cases of mito

Hear from leading experts in mito, as well as patient stories and updates from AMDF.

Date: Saturday 12 May
Time: 10am
Venue:Sydney Children’s Hospital, High St, Randwick NSW 2031
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

Click here for the event program.


Mito Connect Call
19 May 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 19 May. The topic that will be discussed on this call will be ‘Your Child at School’ and MCAP Member, Mia Bell, will be sharing her experiences and available to answer your questions.

 

Date: Saturday 19 May
Time: 1:30-2:30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


June

Mito Connect Call
16 June 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 16 June. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 16 June
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Mito Information Day – Adelaide
23 June 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Adelaide.

Hear from leading experts in mito, as well as patient stories and updates from AMDF.

Date: Saturday 23 June
Time: TBD
Venue:Women’s and Children’s Hospital, 72 King William Rd, North Adelaide SA 5006
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113


LHON Conference – Nashville
28-29 June 2018 

Image reading Leber's Hereditary Optic Neuropathy

The annual Leber’s Hereditary Optic Neuropathy (LHON) conference will be held in Nashville, Tennessee from 28-29 June.

More information will be provided shortly. Please note this is an international event.

Date: 28-29 June 2018
Time: TBD
Venue: TBD

Visit the event website for further information.


July

Mito Connect Call
19 July 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 19 July. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 19 July
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


August

Mito Connect Call
18 August 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 18 August. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 18 August
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


September

Paediatric Mito Information Day – Melbourne
8 September 2018 

AMDF Mito Information Days

Join us at a Mito Information Day in Melbourne. It will be focused in paediatric cases of mito.

Hear from leading experts, as well as patient stories and updates from AMDF.

Date: Saturday 8 September
Time: TBD
Venue:Murdoch Children’s Research Institute, Royal Children’s Hospital, 50 Flemington Rd, Parkville VIC 3052
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113


Mito Connect Call
20 September 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 20 September. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 September
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


October

Mito Connect Call
20 October 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 20 October. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 20 October
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


November

Mito Connect Call
22 November 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 22 November. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 22 November
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


December

Mito Connect Call
20 December 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 20 December. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 December
Time: TBD
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Walk National Series 2018


The Bloody Long Walk is a 35km challenge to cure mito. Participants will raise money to support mito patients and their families and fund AMDF’s research, advocacy and education efforts. Over the last five years, The Bloody Long Walk has raised $5 million and extensive awareness amongst the thousands of walkers and their supporters. to get involved, you can participate, sponsor a friend, volunteer or promote the event.

Locations:

Brisbane (15 July) – Register Now!

Townsville (29 July) – Register Now!

Adelaide (19 August) – Register Your Interest

Melbourne – (26 August) Register Your Interest

Sydney North (9 September) – Register Your Interest

Perth (23 September) – Register Your Interest

Newcastle (7 October) – Register Your Interest

Canberra (14 October) – Register Your Interest

Sydney East (21 October) – Register Your Interest

Follow The Bloody Long Walk on FacebookTwitter and Instagram.


Ongoing

Albury Support Group

AMDF Support Groups

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

NDIS National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View a list of events.


Planning Your Own Event?

Are you planning an event in support of AMDF?  If so, please let us know by emailing info@amdf.org.au