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Upcoming Events

AMDF Upcoming Events

 

Upcoming Events

Select a month or scroll down to view upcoming events

June 2018 September 2018 December 2018
July 2018 October 2018
August 2018 November 2018

View The Bloody Long Walk National Series events here

View ongoing events here

View our supporters’ events here

View our supporters’ events here

 


June

Mito Information Day – Adelaide
23 June 2018 

AMDF Mito Information Days

Join us for our Mito Information Day in Adelaide.

Information Days offer the mitochondrial disease (mito) community the unique opportunity to hear from, and speak with, leading researchers and medical professionals working in the field. They also provide opportunities for community members to connect. Find out more here.

Date: Saturday 23 June
Time: 10am
Venue: Women’s and Children’s Hospital, 72 King William Rd, North Adelaide SA 5006
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

Click here for the event program.

AMDF offers travel grants to assist people affected by mito to attend Mito Information Days. Find out more here.  Applications for Adelaide close Friday 18 May.


LHON Conference – Nashville
28-29 June 2018 

Image reading Leber's Hereditary Optic Neuropathy

The annual Leber’s Hereditary Optic Neuropathy (LHON) conference will be held in Nashville, Tennessee from 28-29 June.

More information will be provided shortly. Please note this is an international event.

Date: 28-29 June 2018
Time: TBD
Venue: TBD

Visit the event website for further information.


July

Mito Connect Call
19 July 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 19 July. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 19 July
Time: 1.30pm – 2.30pm AEST
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Mito Information Day – Brisbane
28 July 2018 

AMDF Mito Information Days

Join us for our Mito Information Day in Brisbane.

Information Days offer the mitochondrial disease (mito) community the unique opportunity to hear from, and speak with, leading researchers and medical professionals working in the field. They also provide opportunities for community members to connect. Find out more here.

Date: Saturday 28 July
Time: 10am
Venue: Lady Cilento Children’s Hospital, 501 Stanley St, South Brisbane QLD 4101
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

Program coming soon.

AMDF offers travel grants to assist people affected by mito to attend Mito Information Days. Find out more here.  Applications for Brisbane close Friday 15 June.


August

Mito Connect Call
18 August 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 18 August. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 18 August
Time: 12.30pm – 1.30pm AEST
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


September

Paediatric Mito Information Day – Melbourne
8 September 2018 

AMDF Mito Information Days

Join us for our Paediatrics Mito Information Day in Melbourne. This session will tailored for parents of children with mitochondrial disease (mito).

Information Days offer the mito community the unique opportunity to hear from, and speak with, leading researchers and medical professionals working in the field. They also provide opportunities for community members to connect. Find out more here.

Date: Saturday 8 September
Time: TBD
Venue: Murdoch Children’s Research Institute, Royal Children’s Hospital, 50 Flemington Rd, Parkville VIC 3052
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

Program coming soon.

AMDF offers travel grants to assist people affected by mito to attend Mito Information Days. Find out more here. Applications for Brisbane close Friday 27 July.


Stay in Bed Day
16 September 2018

Stay in Bed Day is a guilt-free lie-in to help raise awareness about mito and funds for AMDF. It reflects the powerful fatigue that many patients experience. You can get involved by staying in bed all day or having a pyjama day at the office or school and asking people to sponsor you. Please visit the Stay in Bed Day website for more information.

Email Dominique.Connerty@amdf.org.au if you have any queries.


Mito Connect Call
20 September 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 20 September. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 September
Time: 1.30pm – 2.30pm AEST
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


October

Mito Connect Call
20 October 2018

Mito Connect Calls
A Mito Connect Call will be held on Saturday 20 October. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Saturday 20 October
Time: 12.30pm – 1.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Trek – China
18-27 October 2018

AMDF and Inspired Adventures have teamed up to offer this once-in-a-lifetime opportunity to trek the Great Wall of China, visit historical sights and become immersed in the local culture, whilst raising vital funds to support Australians affected by mito.

Date: Thursday 18 October – Saturday 27 October
Where: Great Wall of China
How to Register: Inspired Adventures’ website

Over five inspiring days, you will follow remote and unrestored paths between otherwordly mountains, through local villages, across rolling farmlands and overlooking breathtaking scenery, as you navigate around some of the most majestic parts of the Great Wall. Atfter the trek, you will get to discover Bejiing’s confounding and contrasting culture.

Find out more by visiting Inspired Adventures’ website.


November

Mito Connect Call
22 November 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 22 November. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 22 November
Time: 1.30pm – 2.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


AussieMit
29 November – 1 December 2018

AussieMit 2018 will be the sixth biennial Australian conference for mitochondrial research. The conference brings together biochemists, geneticists, microbiologists, system biologists, clinicians and students to explore mitochondrial science and advancements in the latest diagnostic, treatment and preventative options for mito.

Date: Thursday 29 November – Saturday 1 December
Time: Various
Venue: Bio21 Institute, University of Melbourne, Parkville

Leading national and international researchers will give presentations alongside students and early-careeer researchers. Topics will include mitochondrial biology and mitochondrial dysfunction in disease and ageing. Click here to see confirmed speakers.

The main conference will also be accompanied by:

 

Visit the AussieMit website for more information and keep up to date by liking the AussieMit Facebook page.


December

Mito Connect Call
20 December 2018

Mito Connect Calls
A Mito Connect Call will be held on Thursday 20 December. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 December
Time: 1.30pm – 2.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@amdf.org.au or call AMDF on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An AMDF staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The AMDF staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Walk National Series 2018

The Bloody Long Walk is a 35km challenge to cure mito. Participants will raise money to support mito patients and their families and fund AMDF’s research, advocacy and education efforts. Over the last five years, The Bloody Long Walk has raised $5 million and extensive awareness amongst the thousands of walkers and their supporters. to get involved, you can participate, sponsor a friend, volunteer or promote the event.

 

Brisbane (15 July) – Register Now!

Townsville (29 July) – Register Now!

Adelaide (19 August) – Register Now!

Melbourne – (26 August) Register Now!

Sydney North (9 September) – Register Now!

Perth (23 September) – Register Now!

Newcastle (7 October) – Register Your Interest

Canberra (14 October) – Register Your Interest

Sydney East (21 October) – Register Now!

Follow The Bloody Long Walk on FacebookTwitter and Instagram.


Ongoing

Albury Support Group

AMDF Support Groups

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

NDIS National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View a list of events.


Planning Your Own Event?

Are you planning an event in support of AMDF?  If so, please let us know by emailing info@amdf.org.au